If you work in healthcare communications in Europe and are not familiar with EUPATI then this Shared Experience is a must attend event. Even for those more familiar with EUPATI, the session will provide further insights into their work and partnership opportunities for industry, with the opportunity to ask questions directly to the organisation’s coordinator and a leading EUPATI Fellow.
The European Patients’ Academy on Therapeutic Innovation (EUPATI)
is a pan-European project implemented as a public-private partnership by a collaborative multi-stakeholder consortium from the pharmaceutical industry, academia, not-for-profit, and patient organisations. The Patients' Academy was started, developed and implemented as a flagship project of the Innovative Medicines Initiative, and continues to be led by the European Patients’ Forum. EUPATI has already trained over 150 patient experts on medicines development, clinical trials, medicines regulations, health technology assessment. Additionally, EUPATI offers and maintains the Toolbox on Medicine Development (+3 million users - April 2020), and coordinates a network of national platforms for patient advocates.
EUPATI focuses on education and training to increase the capacity and capability of patients to be valuable contributors to medicines research and development by working with patients and the stakeholders they collaborate with, and also improve the availability of objective, reliable, independent, patient-friendly information for the public.
Maria Dutarte, Coordinator, European Patients’ Academy (EUPATI)
Maria joined EUPATI in 2020 as the Coordinator. She oversees the team’s activities and manages the Patients’ Academy. She has previously worked as a Project Manager at the European AIDS Treatment Group (EATG) coordinating patient involvement in a number of training initiatives and scientific projects. Maria has also worked for different scientific and international organisations. Her educational background is in International Education and Communications.
Souzi Makri, Vice- President - Cyprus League Against Rheumatism, EUPATI Fellow
Souzi Makri holds a BA degree in Economics and has completed a course at the Open University UK, in the field of Psychology. She has been working as volunteer with the Cyprus League against Rheumatism (CYPLAR) since 2008 and currently holds the position of the Vice- President. She was diagnosed with a rheumatic disease in 2008. Souzi has been trained as a Patient Research Partner by EULAR and she has become a EUPATI Fellow, after completing a 14-month course in the research and Development of Medicines. Souzi Makri has been the Chair of AGORA (AGORA is an umbrella platform representing 19 patient organizations of people with Rheumatic and Musculoskeletal Diseases (RMDs) from 15 countries of Southern Europe) from September 2011 to September 2017, the year she was appointed as Honorary Chair. From 2015- 2019 she has been the President of ENFA (European Network of Fibromyalgia Associations). She is currently the Chair elect for EULAR PARE (People with Arthritis and Rheumatism).
Access to HCA Online Events
Approximately 24 hours in advance, you will receive by email a link with details about how to access this event. We use Zoom as our digital platform. Zoom also has Android and iOS apps which can be downloaded in advance should you wish to participate using a mobile device.
N.B. Please ensure you have registered at least 24 hours in advance in order to receive login details.