About the session
A grassroots movement of patients, carers and relatives, use MY data is the only independent patient movement in the UK focused on promoting the use of patient data to save lives and improve outcomes. Their vision is of every patient in the UK willingly giving their data to support medical research and their own care. Their mission is to be a Trusted Voice for patients and the public in all discussions and decisions about the use of our data for research and improving healthcare. Hear from use MY data members about their work, its impact and why our data needs to be used.
Panel Information:
Richard Ballerand - Richard is an Axolotl partner and digital health engagement advisor. Based in London, he draws on extensive lived family experience of British, French, and American healthcare systems - including advocacy, clinical trials, and care coordination.
Chris Carrigan - Chris Carrigan is Data Adviser to use MY data and part of the Secretariat for use MY data. Chris is a specialist in health data and information, but with a particular focus on patient involvement and patient voice.
Ceri Steele -Ceri Steele became interested in research and using her own experiences to help other patients after being diagnosed with oesophageal cancer in October 2019.
David Snelson - David Snelson started taking an interest in health data when he became aware of data disconnects between NHS organisations dealing with several chronic conditions that he has developed in recent years.