This year, the HCA and communications agency 90TEN – part of Envision Pharma Group – are partnering to bring you a series of four webinars that will facilitate in-depth knowledge-sharing and discussion across a range of patient advocacy topics.
Webinar 1 takes place on Monday 8 July 2024. It will focus on the role of the healthcare industry in supporting caregivers to achieve better health outcomes for the people they care for, whilst advocating for their own needs and wellbeing.
We are delighted to be joined by Chris Bedford-Gay, Founder and Chairman of FOP Friends, who will be sharing his lived experience of caring for his son Oliver, who was diagnosed Fibrodysplasia Ossificans Progressiva (FOP), a very rare progressive condition, in 2009; Trishna Bharadia, health advocate and Patient Engagement Consultant, who will share her experience of being a caregiver and the potential role of pharmaceutical companies to support caregivers; and Chelsea Moran, a member of the Patient Partnerships Team at Astellas, who, drawing on her experience in the pharmaceutical industry, will share examples of the work her team has done to support caregivers, and why Astellas is elevating the voice of caregivers to improve patient outcomes.
Session Outline:
- Setting the scene: Caregiving and the challenges faced
- Caregiving: a personal perspective – Chris Bedford-Gay, FOP Friends
- The hidden voice and the role of industry – Trishna Bharadia
- How industry can better support caregivers to improve patient and caregiver outcomes – Chelsea Moran, Astellas
- Panel discussion with Chris, Trishna, and Chelsea
Speaker Biographies:
Chris Bedford-Gay, Founder and Chairman FOP Friends
Chris has been involved with the FOP community since his son Oliver was diagnosed with the very rare progressive condition in 2009. He was one of the founding trustees of FOP Friends, after learning that there was no UK charity to support families with FOP. Chris serves as chairman of FOP Friends and has also been a Board Member of the International FOP Association (IFOPA) since 2011. Chris is currently the Chairman of the IFOPA International Presidents’ Council, bringing together FOP organisations and leaders from across the world. He carries out this work alongside his day-job as director of UK based technology company, Skillsarena.
Trishna Bharadia, Patient Engagement Consultant & Health Advocate, The Spark Global
Trishna is a multi-award-winning patient engagement consultant and health advocate, working with multiple stakeholders to better embed the patient and caregiver voice into the healthcare ecosystem. This includes working with pharma, clinical research organisations, medtech, academia, publishers and patient groups, both nationally in the UK, where she is based, and internationally. She works both within therapy area and above therapy area. Key areas of focus include good patient engagement practice and strategies, developing patient-centred projects, diversity/equity/inclusion issues in healthcare and research, and patient involvement in health information and scientific publications. She's a patron/ambassador for several health- and disability-related charities, is an honorary member of the Faculty of Pharmaceutical Medicine (Royal College of Physicians) and is a Visiting Lecturer on Patient Engagement at the Centre for Pharmaceutical Medicine Research, King's College London. Among her various accolades, she's been awarded a Points of Light Award by the UK Prime Minister's Office for her work with patient communities and is a PharmaVoice 100 honouree for outstanding contributions to the life sciences industry.
Chelsea Moran, Patient Partnerships Lead, Specialty Disease & XLMTM, Established Markets, Astellas
Chelsea has worked in the pharmaceutical industry for over 10 years, gaining patient engagement experience in various disease areas including HIV, liver disease, women’s health, and rare diseases. She is passionate about working with patients, patient organisations and caregivers to understand their needs, to integrate their perspectives into her work, and to co-create solutions to help improve health outcomes. Chelsea lives with her partner in London and enjoys reading, travelling, learning new languages, and cooking.