FREE registration for all HCA members who have signed up for the 2022 Conference package.
Panel Member - Dr Puja Myles, Puja has been at CPRD since April 2017 when she initially joined as Head of Observational Research. In October 2022, Puja was appointed as Director of CPRD. Puja trained as a public health specialist and epidemiologist following her initial clinical training and practice. She was then a public health academic working with real world data for many years before she joined CPRD. She is a fellow of the Faculty of Public Health (UK), a senior fellow of the Higher Education Academy (UK) and holds a PhD in Epidemiology.
Panel Member - Grace Annan-Callcott, Program Adviser, Data for Science & Health at Wellcome Trust, and was also the Communications Officer for Understanding Patient Data, an initiative that collaborated with patient groups, charities, NHS organizations and policymakers to bring transparency, accountability and public involvement to the way patient data is used.
Panel Member - Rory Cellan-Jones, former Technology Correspondent at BBC, who reflects on the topic as a journalist and patient, and advocates the need for creating a simple narrative around the benefits of data sharing and the role of the media in the public perception.
Moderator - Kathrin Harhoff, Managing Director Integrated Communications at Real Chemistry
While Real World Data has enabled us to address pressing healthcare needs much more quickly and reliably, predicting outcomes and risks, foremost with the best interest for patients at the center of decision making, there is still a lack of information for the public on how patient data is used and why it’s important. As a result, the public debate is quickly taken over by data privacy activists that focus on highlighting the relevant risks associated with personal health data. We believe, as communicators, we can and need to do more to shift the conversation.
In this panel discussion, we’re going to focus on:
- Why we need to have a better patient data narrative to provide a more balanced perspective on risks and benefits on the use of patient data
- Why we need research, advocacy but also better communication to build trust and put patients at the centre of decision making
- How we as communicator can make a difference when it comes to data availability, quality and protection for individuals
With guest panellists who specialise in health research and legislation, this is a discussion not to be missed. As the demand for data and use of technology continues to increase in healthcare, the need for trust and use of anonymised patient data from the public will be vital for health innovation.
Dr Puja Myles, Director of CPRD
Puja has been at CPRD since April 2017 when she initially joined as Head of Observational Research. In October 2022, Puja was appointed as Director of CPRD. Puja trained as a public health specialist and epidemiologist following her initial clinical training and practice. She was then a public health academic working with real world data for many years before she joined CPRD. She is a fellow of the Faculty of Public Health (UK), a senior fellow of the Higher Education Academy (UK) and holds a PhD in Epidemiology.
Grace Annan-Callcott, Programme Advisor for Wellcome Trust
Grace leads the learning, communications and influence work for the Data for Science & Health team at Wellcome. She supports the team to help explain how trustworthy data science can advance Wellcome’s aim to solve the urgent global health challenges facing everyone, with a focus on infectious diseases, climate and health, and mental health. She was Comms Officer for Understanding Patient Data, publishing content across multiple channels to influence the way patient data is used, and make the system more transparent, accountable and trustworthy.
How to Book
All members who have signed up to the HCA Conference package will qualify for a free place at this event. Please login to activate your free place - which will appear online at point of booking for those members who qualify.
Registration Deadline: 12pm, Wednesday 12th December
This session is kindly sponsored by Real Chemistry